Preparation for Treatment
These tests and reports will need to be done at your home hospital (if other than UCSF). Your physician will send the results in advance of your arrival for your MIBG treatment.
- Physical exam
- Stem cell harvest (if not already done)
- Blood tests
- CT/MRI scan
- Bone marrow aspirate & biopsy
- MIBG scan
How to Prepare Child for Treatment
During the weeks before the MIBG treatment, it is important that patients not take any medications that interfere with the uptake of MIBG by tumor cells, i.e. over the counter cold medicines. If you are unsure of any medications, please discuss with the MD/NP at UCSF.
MIBG therapy requires a bladder catheter and radiation isolation. It is important to prepare your child for these procedures and isolation in a way that will make the treatment easier for them to understand.
A bladder catheter (called a Foley catheter) will be placed to protect your child’s bladder from excessive radiation.
Your child will be radioactive after the MIBG infusion, and the time you can spend in the room with your child will be limited for approximately 5-7 days.
It is important to start weaning co-sleepers prior to treatment, so their anxiety will be minimized when you must sleep away from them.
Please coordinate to have two adult caregivers to assist with care.
What can be Brought to Hospital
Radiation contamination occurs by the direct or indirect transfer of body fluids (skin oils, sweat, saliva, urine, stool, etc.) from the patient to objects or items.
Nothing can leave the radiation isolation room without being screened by radiation safety to make sure it has not become radioactive. If an object has become radioactive, it will need to be properly discarded or remain in the hospital for up to 3 months until it is no longer radioactive.
It is ok to bring such items as laptops, iPads, iPods, cell phones, hand held gaming systems, as they will be covered in plastic by the Radiation Safety team and will have minimal of chance of being contaminated. If an item is contaminated, it will have to be left behind for a period of time before Radiation Safety can send it back to you.
Items to Bring: coping tools, meds, supplies
Plan to bring activities or movies that your child will enjoy doing on their own, such as books, crafts, cards etc.
Our Child Life Specialist will also meet with you and your child to help prepare him/her for admission the procedures and to bring other age appropriate activities to keep your child busy.
It is okay to bring your child any snacks or food they like. However, our kitchen serves a variety of food they may enjoy via 'room service', rooms and parents can now order food from our kitchen. This convenience allows parents/caregivers to spend more time with their children.,
We do have gaming systems and movies (DVD/VCR). Please feel free to bring games or movies your child especially likes.
Favorite items from home should NOT come to the hospital because they may become contaminated and have to be kept for a few months before sending back to the family. This includes patient’s favorite clothing, pillows, stuffed animals, blankets, etc.
If possible, try to bring copies of these items that can be properly discarded or left behind at the end of hospitalization.
Other Things to Bring: Medication and Supplies
All medications that your child takes at home such as Septra (Bactrim), Zofran/Kytril or any pain medications. You may need them during your stay or on your way home.
Dressing and flush supplies (e.g. Heparin) for central lines
Bringing these will save time and money.
What is Available in Room
This is standard private room that has lead lined walls. It has a private restroom, sink, windows, closet space. There are special monitors above the bed to monitor radiation levels and vital signs.
There is a television, DVD player, Wii, and Play Station 2.