Guidelines for Home Care After Treatment
For 7-14 days after discharge, patients are advised to:
- Continue to take potassium iodide (KI) per label on potassium iodide solution vial or orders provided at time of discharge from NP/MD.
- Flush toilet twice after urination. Boys should sit to urinate to avoid splashing.
- Use disposable diapers and be sure to place in outside garbage can at least once a day. Use disposable vinyl gloves while changing diapers.
- Wash hands carefully with soap and water after changing diapers, handling urine, vomit, or stool.
- Bathe daily, and wash hands frequently.
- Avoid close contact (closer than arm’s length) for longer than fifteen minutes per day for the first week after treatment.
- Patients may not hold infants for one month after treatment to prevent undue radiation exposure.
- Avoid pregnant women.
Follow up After Discharge
Labs will be evaluated twice weekly until blood counts recover.
Weekly physical exams will be performed for 4-6 weeks.
Stem cell infusions are usually 2 weeks after MIBG infusion, if required by your child's protocol.
Restaging with scans, bone marrow biopsies and labs will occur approximately 4-6 weeks later.
The radiation safety team will place a wrist/ankle band on your child prior to leaving the hospital. It will be worn for 30 days. It will let other health care providers and airport security know your child has been treated with radiation. It will also have an emergency contact number for UCSF.